St. Charles Parish family turning tragedy into advocacy about pediatric cancer
Amelia, 4, was diagnosed with a rare and aggressive brain cancer earlier this year
Amelia, 4, was diagnosed with a rare and aggressive brain cancer earlier this year
Amelia, 4, was diagnosed with a rare and aggressive brain cancer earlier this year
A young girl from St. Charles Parish has been diagnosed with DIPG, a rare and aggressive form of brain cancer with no known cure.
Amelia, 4, finishes up radiation on Thursday. In September, she will travel to Michigan with her family for specialized medicine, which they hope will slow her tumor's growth.
Brittany Stevens, Amelia's mom, told WDSU she quickly learned no one will advocate for her daughter as much as she will. That is why the family decided to share their story.
"I had to do my research on everything, and when I tell you the research is so disheartening," said Stevens. "Only four percent of what is donated to cancer research is allocated to pediatric cancer, and that’s not brain cancer. That’s pediatric cancer as a whole."
Stevens' claim is backed up by data compiled by the Children's Cancer Foundation. Her hope is by raising awareness, more money will be allocated to pediatric cancer research, specifically the kind her daughter has.
"This has been around, and there is not one, there is not one FDA treatment (for DIPG)," said Stevens.
In true Louisiana fashion, there has been an outpouring of support for Amelia and her family in their time of need. Fundraisers are popping up across the New Orleans Metro area, including a trunk or treat event scheduled for Oct. 26 from 6-10 p.m. in Marrero. It is happening at 5131 Lapalco Blvd.
The family is also accepting donations at this link.
Stevens told WDSU she is holding out hope that her daughter can defeat cancer.
"That could be intuition, or that could just honestly be denial. I don’t know which one, but in my gut, I feel like she’s got this," said Stevens. "I will not stop giving up hope."